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harith ami & muhriz

semlm call KLM lerr kira2 ada lagi satu kotak boleh bawak.so sape2 nak pesan WMF or manduca boleh msg sini or add me kat fb ok tapi kene order before thursday.pesan beemer tok bleh ok?hehe kitorang balik 28 dec ni



Mintak rajin hupdate sikit sebab dah nak balik msia ni.On Muhsin 6mths of exclusive bfeeding, dah solid pon adik ni.Tapi mana nak ada masa ni,kemas barang satu pon tidak lagi tapi nak balik for good dah after xmas.Next week pulak his last surgery InsyaAllah.Mama doakan ini yg last.Busy bershopping lagi,ada jugak yg pm boleh tak kirim2 barang.Sorry ye yang besar2 tak boleh kot sebab tak amik kontena pon except utk kete bapaknya.Yg lain antar kot laut gak tapi takde lah satu kontena jadi tak de lah murah.Nak pesan manduca ke yang ringan boleh la.
So yg kene balik dulu HWS237 ni.mintak2 selamat semua and boleh kurang tax kaw kaw punya.HSW237=Harith Wan Salmizaini 23 July is my birthday hehe.Ingatkan nak amik date anniversary tapi tak available.Kete ni mmg sentiasa comot sebab jarang basuh,sini car wash mahaiii.


Ok nak sambung buat list.So many things to do.


Alhamdulillah,Muhsin was allowed to go home 10 days after the surgery(9.11.2013).It was supposed to be the "simplest" surgery among the 5 he needed.Surgery was successful and my brave boy tak payah morphin pon.He woke up 2hrs after the surgery and was sent back to his room,tak payah dok ICU dulu.So we thought everything was good,in 3 days boleh balik.Turned out not!Muhsin caught this rare post operative bacteria infection which sent him to NICU for 2 days.Surgery was on Thursday, Sat afternoon,tiba2 aja badan menggeletar,mulut berbuih,vomitting,stretch kaki,badan,temp shot to almost 40.I had never seen him so sick before :( So I rang the nurse,nurse terus panggil surgeon but he said maybe just sakit from the operation as they had started to reduce the painkiller.Ok fine but deep inside dah rasa it was something else.Mlm Sabtu jadi lagi,around 2am and after painkilller.I was almost right,kalau sakit sebab operate kenapa lepas dah bagi painkiller jadi macam tue.The surgeon yg on call dtg lagi and said they would send him for CT scan to see for possible tremor(in some cases body shivering relates to tremor).I knew the dr was wrong,I knew his condition tak ada kene mengena dgn otak!If it was not the withdrawal symptom(from the painkiller) it must be something else.So ahad pagi,again temp shot to 40 but this time no shivering so we knew already,mesti infection,so terus amik darah and muhsin was sent to NICU.the surgeon described his condition as very ill :( NICU is one place I dread going back,it's too much for me.It reminds me of Muhsin previous condition,his 38 hospital stay right after birth.But they had no choice,NICU ramai nurses.I was not allowed to sleep there so I told the nurse kalau Muhsin nangis just called me,I would be sleeping in the surgical ward downstairs.So they did.Pukul 3 pagi,pukul 5 pagi.Muhsin dah start takot nurse,doctors so they had to cover his bed so Muhsin tak nampak nurse or doctor lalu lalang.2 days in NICU and 3 different antibiotics,6 times kene amik darah tangan kanan kiri,kaki kanan kiri,they released him back to the surgical ward on Wednesday.The drainage from kidney needed to stay until urine was clear from bac.So for the next 3 days,macam tuh lah cycle nye antibiotics,blood test,urine test.Mlm mamanya tak tido mana since the nurse came in every 2-3hours to check the drainage,give antibiotics,clear the urine bag,bgn pump lagi.Around 5am adik dah bgn.So mmg mak panda lah mama but it's okay,to see him smiling again hilang penat semua.Masa kene infection tue all the nurses and dr comment ckp Muhsin dah tak senyum,dulu suka senyum.Of course la kan,tiap2 hari kene amik darah sapa boleh senyum.So we went home on Sat afternoon,tapi monday pegi balik,another blood test and the dr dah confirm lab ckp mmg tak ada bac dah,urine pon dah okay.The surgeon ckp bacteria tue rare dan ganas,that was why he was so sick.Alhamdulillah Allah permudahkan semua akhirnyaSurgery site dah okay,no more dressing and scan pon kidney is working fine again,wee wee makin byk!So this Monday ada follow up with his atuk(HOD heheh) and he will decide on the date of his last operation.

Right after the operation

 Puffy face.
 Drainage direct from kidney.so kene hati hati
 Our room was empty.Adik kat NICU
 NICU.demam :(

 Back in surgical ward.
 Boring kat katil dok dlm babywagen
 Abg as Mr Dr hehe
 In playroom.Not too far from our room.
 See his happy face?

 His med.Masa 1st operation he got 13 of these.Can u imagine?
 Thanks Christian.His fav nurse.We will come back in a month
 We are leaving  to Medizinische Hochschule Hannover Kinderklinik in a few hours.Need to check in 24hours prior to the surgery.Semoga dipermudahkan,dijayakan pembedahan dan semoga anak ku cepat cepat sembuh.Abang elok2 kat rumah dgn babah nanti dtg visit adik macam biasa jgn main wire machine ok.Alhamdulillah Muhriz has been a very wonderful and understanding brother.Sebelum pregnantkan,lahirkan adik die,mama tak pernah tinggalkan Muhriz ni except pegi kedai beli santan,tapi tgk2 die okay aje ckp babai mama,babai muhsin,tshuss see youu bila nak balik dgn babah dari melawat adik kat hospital.Nak tido babah ckp die akan kata muhsin akit.on the way nak dtg visit,bertasbih nama muhsin dlm kete.Semoga hati anak2 Mama ni mmg sentiasa dekat kepada Allah dan dekat satu sama lain.InsyaAllah keluar dari hospital nanti mama update lagi.Doakan yg baik baik


3rd hospital stay.Sebab yg 1st and 2nd surgery were done on the same day,masa umur 2 hari. He needs 5 surgeries all together in 7months.2 days before Muhsin was allowed to go home after his 3rd surgery 2 weeks ago,his surgeons came and told us that another surgery is needed.Actually mmg dah rasa sebab masa temankan Muhsin buat test di nuclear medicine tu Dr kat situ dah ckp kat hubby.This time nak repair path from kidney to bladder,the muscles are too strong.Not a problem now but if it might cause excessive pressure to the kidney later.We just nodded, and agreed.Kidney is part of his VACTERL Association,so we have read about this before.So they arranged it to be done this Thursday.His HOD told me it's going to take 1 hour,another laparoscopy and Muhsin needs to stay in ward for 5days.Don't worry sayang,mama akan temankan.Semoga Allah permudahkan urusan kami.Saya sentiasa ingatkan diri saya kalau susah,ada lagi yg susah.Sedih is normal but not helpful and I need to be strong for my baby.Last time in NICU a mother whose daughter with heart beyond repair gave me a shoulder to cry on.Last 2 weeks,I saw a blind mother datang alone with her toddler and baby ke radiology bawak anak scan.Dan yg satu ward dgn Muhsin,that girl has hearing impaired and digestion problem.Allah tak akan uji diluar batas kita.Mesti yakin.Mesti.Minta Allah permudahkan.Mesti minta.Bila hanya ada saya,suami dan anak2,saat macam ni buat kami makin appreciate each other.Hanya yg pernah lalui akan faham.My baby bukan sakit demam.Bukan.But he is a real fighter.He's stronger than the rest of us.Mama sekuat mana pon when the nurse came to me,and said the time had come to stroll him to the operation room,I cried.Tapi Muhsin,buka mata lepas operate di ICU terus sengih even dr tak bagi morphin pon just normal painkiller.Hmm bila ada masa nanti mama tulis ye macamana mama ni yg Deutsch tunggang terbalik temankan Muhsin kat hospital.It's not easy I tell you,nurse ckp lain,mama paham lain heh heh.Dgn doctors tak ada problem sangat,diorang tau English.Ok,kene siapkan lauk frozen untuk babah and abang,kalau tak selama tue lah diorang tak makan nasi asik kebab dan pizza.Please pray for his health ye,thanks :)


Took this shot exactly 2 weeks post operatively.Alhamdulillah no more dressings,he went through a minimal invasion surgery(laparoscopy) so cepat recover.In 9 days there will be another surgery(surgeon will attempt another laparoscopy),can you believe how strong this little boy is?5 surgeries all together in 7months,semoga Allah mudahkan,jayakan semuanya,semoga anak ku cepat sembuh dan semoga tiada lagi sakit lanjutan baginya.Mama hanya mampu doakan untuk kamu sayang tapi mama sangat yakin Allah akan bantu kita through this.
Assalamualaikum
Operation went well though it took 5 instead of 3 hours but my little baby is a fighter,donot worry sayang we will go through this together.Was told that the surgery was less complicated this time but somehow it was harder on me because since we brought Muhsin back home from his 38 days NICU stay,he's been doing great,tak pernah sakit.So bila I passed him to the anaes semlm,utk dibawa ke OT,I asked her if I was doing the right thing,muhsin x sakit and there was I,bagi die utk dibedah.Allahu Akbar mama mmg byk fikir.Please pray for his speedy recovery.In 6 weeks there will be another surgery.Semoga Allah permudahkan

4am.bgn pump.

cerita last week.actually thursday register adik dan buat passport di frankfurt.lepas tu overnight di Metz.pagi esoknya gerak ke disneyland paris.nanti ada masa sambung tulis 

Ingat malas tulis pasal minyak,tapi nak tulis jugak as I still tak paham why some ppl macam sgt menyokong minyak naik ni.After all this is my blog,hihi kalau tak setuju dok diam je lah kan.

Yg menyokong,ckp 20sen je,bukan main compare harga minyak dgn singapore lah,US lah.ckp standard lah harga barang satu dunia pon naik.tapi fikir2 lah:
1)20sen maybe nothing to you.tapi RM0.20X50L dah naik RM10 sekali isi full tank,dlm sebulan naik RM50.might be a lot to some.Dan selalunya,minyak naik benda lain akan naik.Ada ckp,dah tue pandai2 lah adjust berjimat.Habis tue kalau nasi lemak kan kantin sekolah dari RM1 jadi RM1.20 budak2 yg hanya mampu bawa bekal duit RM1 dah kene makan kuih je.Sementelah kamu mampu,jgn lupa ada yg kurang.Agama Islam sentiasa ingatkan kita fikirkan golongan yg bernasib yg kurang dari kita.

2)compare minyak dgn US,Singapore yg jauh lagi mahal.Saya rasa tak adil.Some negara yg dikata itu  bukan pengeluar minyak.US mmg produce some oil tapi masih perlu import 2x dari apa yg diproduce.Kenapa tak compare harga minyak dgn negara pengeluar juga.Harga di kilang confirm tak sama harga di kedai.pandai ckp contoh syukur lah kalau kat german ni 1liter 1,60Euro=RM6,40.tapi jgn lupa diorang earn about the same dgn rakyat msia contohnya waitress around Euro1000,engineer Euro3000,bukannya Euro12000.Dan Germany ni bukan pengeluar minyak.

3)Katanya harga naik sebab ikut pasaran dunia.before this maybe boleh ckp minyak dunia naik,kita pon kena naikkan.This time alasan tu tak boleh pakai sebab harga minyak tgh turun,tak payah nak speculate tgh naik mentang2 Middle East tgh tak stable.Boleh baca report die Reuters. minyak dunia naik turun tapi ron95 kita naik aje

4)Janji PM.Memanglah, even PR menang pon tak tentu harga minyak boleh turun.Tapi itu kita tak tahu.Yg tahu BN menang dan PM janji harga minyak tak naik selepas GE.Sekarang janji dicapati.Nabi Muhammad SAW pon tak pernah berjanji apa2 yg tak pasti.Mungkir janji sudah Pak Najib,mana rakyat tak marah.Before GE janji minyak tak naik,dah habis GE terus naikkan so that 5 tahun nanti org dah lupa.Biasalah mudah lupa.Dah tue ada kalau dikira Ron95 katanya subsidi RM0.63 so harganya RM2.10+RM0.63=RM2.73 tapi RON97 tak ada subsidi harga RM2.70,apa pasal pulak RON97 lagi mahal huhu.Kantoi pulak so dgrnya RON97 pon akan naik soon.Maybe PM lupa nak announce awal2 kot hehe

Tau reducing the subsidy helps to narrow the deficit by RM1bil from what a total of RM50bil?Baik kurangkan pembaziran kerajaan,define subsidy window better ke(yg kaya raya tue tak payah bagi subsidy).increasing pumping price just akan naikkan byk harga benda keperluan yg lain lagi,patutnya jadi pilihan akhir.
Jgn ckp syukurlah negara masih aman.Masalahnya aman ke.Tak perang maksudnya aman lah kot even crime rate sgt teruk.Itu belum bace report Pakar Math ke org buat kira2 subsidi etc,kalau rajin baca lah.But my point here is,sebab kamu mampu dgn kenaikan 20sen tue,jgn lupa ada yg tak mampu dan fikir balik kenapa org marah marah ni.Oklah nak gi kisahkan anak2 bye!


Last 3 Sundays was our anniversary.Sunday in Germany ialah hari senyap hehehe.all shops except restaurants and those in train station/airports are closed.Boring kan?But good thing is kita akan dok rumah je lah.Selain ke park n playground,hubby prefers to stay home berguling dgn anak2 die.Saya x de masalah,mmg dok rumah sokmo pong =p

Halal food is not hard to find but almost all of them are kebab.Sayasuka kebab ni.Keluar every saturday confirm gi mkn kebab so anniversary tak mo lah makan kebab.I told hubby i wanted lobster.Kitorang masak yg paling simple hahaha tapi sedap probably sebab lobster pon dah sedap kan,tak payah nak masak complicated sgt.

Lunch:Broiled lobster with creamy spaghetti
Lobster tue hubby potong tgh dua,letak some butter,pepper and salt.masuk oven for 15mins


Spaghetti rebus till al dente.Tumis garlic and some onion(chopped),add some cappers(rasa masin2 goes very well with anything creamy),parmesan cheese and some grated cheese,2tblspoon of sour cream,some milk,salt and pepper.masuk spaghetti.dah siap.presentation fail tapi sedap.

for dinner bakar ayam je buat black pepper sauce then pair dgn mashed potatoes/gravy,steamed veggie and garlic bread.

pastu buat new york cheese cake.cheese cake ni mmg fav selalu buat pon sebab senang.
 see,x yah masak susah2 pon.muhriz n muhsin kecik lagi,mkn kat rumah mmg lagi tenang sebenarnya huhu.
It means a mis-shapen head shape.Boleh disebabkan oleh position baby dalam perut mama or during birth atau sekiranya the baby is constantly lies or being hold or carried on one side.Muhsin sebab yg last tue,according to his paed,maybe kat NICU diorang asik pusingkan die ke kanan.Mama pon tak perasan shape kepala die dah lari sikit sebab kat NICU mmg tak boleh pegang sgt.

So his paed advised us to get this special pillow,cost us 20Euro tak silap.This thursday ada appointment dgn Orthopaedist,we'll see how it goes tgk Muhsin kene buat treatment ke tak.Mintaknya he is just favoring one side from the other,bukan sebab muscle problem.Sebab die boleh je toleh kiri tapi most of the time die akan pandang kanan.Dr Behren selalu ingatkan any stimulation kene dtg dari kiri.I have a problem with this sebab tak tahu kiri kanan.Kene fikir huhu.Good news is kepala baby lembut lagi so insyaAllah boleh betulkan balik .and it well start to get better once die dah pandai duduk/tak asik baring je.And it doesnot effect the development of the brain cuma cosmetic je lah but I do hope it'll get better.


Weather sekarang sgt unpredictable kan,be it here in Hannover atau kat Malaysia pon sama je rasanya.This year we had prolonged winter,in April pon masih snow.Dhn after half a year bersejuk2 ada la sun kejap for 2 weeks in July.Too hot pula sampai ke 35Celcius.Last week the temperature dropped back to 14C so we thought Fall was here,so belikan adik winter suit ni siap2.

My baby hippo
Tapi tgk2 weekend panas balik so apa lagi,pi pekena ice cream jap.Our current fav flavor is Sneakers,best bangattt.
Hehe yg org pantang tgk ibu baru 3bulan bersalin dah makan ice cream jgn ckp bentan2 yeah,I is no like.Lain org lain badan.This time kite pantang ikut mat saleh yo!huhu actually masa beranak kat muhriz pon gi checkup sebulan dah suruh hubby beli air sejuk muehehe.Org kata jgn makan benda2 sejuk kan tapi kat sini menu kat ward bersalin pon hari2 diorang bagi fresh milk sejuk,yougurt sejuk.Saya makan je.Yougurt buat saya tak sembelit langsung,pastu minum air mineral at least 2bottlex1.5L,urine mmg clear je tak concentrated yg org Melayu panggil kencing kotor.Pastu lagi satu kalau org tua2 lepas beranak tak kasi byk2 gerak kan.Tapi according to my gynae,the only way nak kurangkan angin dlm badan is to move a lot which I did dan kesannya saya tak dak angin2 pon this time.Owh lupa nak ckp anakanda Muhsin,at 3months old,kamu dah ada gigi!His tooth buds are coming out so semlm masa checkup his paed prescribed some fluoride.Babah ckp ni mama la telan bergalloon2 yougurt huhu.
Ok bye.
A temporary EP mom i hope.

Minggu before raya tue bfeeding week kan so rasa nak share my own bfeeding story.

Muhriz was weaned off the breast at 31months,and he was fully directfed,budak tak kenal botol =p

With Muhsin,it's a totally different story.Muhsin sendiri saya pertama kali jumpa die on his 3rd day.After the operation,the esophagus needed to rest hence no mouth feeding until the contrast test was done and the doctor gave an OK.So he was fed through IV or gavage feeding with TPN(Total Parenting Nutrition) for 8days after the repair.
Saya mula pump hari ke 3.Di ICU I was too sick to even get up.First thing the nurse tanya bila masuk normal delivery suite was whether I intended to breastfeed my baby.Of course I said yes though I knew Muhsin tak akan minum susu tue.Every 4 hours saya diingatkan to pump.Susu diorang hantarkan ke Milch Kuche(Milk Kitchen) untuk disimpan.Saya ditahan di ward sampai hari ke 8.Tiap kali ke bilik pump saya perlu bawa selain urine bag,2 lagi drainage bags utk drain darah dari uterus.Besides the c sect cut,the dr buat 2 more holes next to it to drain the excessive blood dari placenta accreta.Di leher ada 3 wires utk ubat dan blood transfussion.The dr called it central line,nurse ckp itu my necklace.Sakit memang.Sebab byk sgt accessory nie dan saya seorang2 di ward,hubby dtg dgn Muhriz around noon to 7pm je,kadang2 nurse yg tolong pasangkan pump,hantarkan pump ke bilik.Tapi most of the times saya jalan sendiri ke pumping room,kene jeling dgn visitor2 sebab byk pakai wire tu biasalah.Susah sikit lah tapi I had decided so I must do it.First few sessions mmg dpt sikit je around 10ml,itu normal.I learned that dgn Muhriz dulu.Sebab it was impossible to direct feed,pumping helped me to establish the milk.Alhamdulillah Allah mada it easy,no sore nipples,engorgement pon tolerable lah lagi.


Started day 8,Muhsin mula diberi breastmilk through tube+TPN(IV).He was on tube feeding sampai day 28.Bila saya sudah boleh pulang ke rumah,rutin saya,setiap pagi sampai ke hospital akan hantar susu dahulu.From day to day dr akan cuba kurangkan TPN dan increased breatmilk intake.Day 15,doctor ckp boleh stop TPN sebab Muhsin accepted my milk very well and blood test pon showed cukup nutrition.So I was beyond happy.Tapi kemudian timbul pula problem dgn vessel leakage.To stop the leakage,vessel tersebut perlu "rehat".In other words,Muhsin tidak boleh diberi any fat melalui mulut.Fat perlu terus ke dlm salur darah tanpa melalui vessel tadi.Jadi no breastmilk.Hanya boleh diberi Basic F yg hanya ada karbo.Sedih saya.Tapi saya redha sebab itu yg paling baik untuk dia sembuh.
Saya masih juga pump.Mesti pump so tak kacau production.Muhsin was on Basic F for 10 days.Hari ke 25 bila tiada lagi fluid keluar dari drainage,baru dr benarkan breastmilk semula.Day 29,sehari sebelum die dipindahkan ke surgical unit,they fed him with bottle for the first time.Alhamdulillah,he took his first bottle very well,tak ada problem.Saya pon try juga direct feed die but failed.I tried every time I went to visit him.Kadang die nak tapi most of the times die reject.
But I didnot give up.Giving up what's best for your baby is a waste.Sampai sekarang saya masih an exclusively pumping mama.Muhsin still rejects my breast tapi kami mmg plan tanak kasi die too attached with breast.Nanti kene admitted for next operation susah pula kan.So i pump every 3 hours.Selalunya dpt around 5oz.Malam pump once before tido dlm kul 10 lepas tue bgn dlm pukul 2.yg ni dpt byk sikit maybe before tido bantai minum air banyak2,susu banyak,badan pon rehat.So dpt lah around 8oz,paling byk dpt 10oz.Tgh mlm ni pump lama sikit sebab tak busy huhu.Siang before hubby comes back from office,bersilat jugak la nak handle both kiddo dan pump lagi.Tapi so far I manage it.Kadang tgh pump adik nangis,abg nak wee wee lah huhu.Morning session yg paling sibuk,nak pump,nak dukung baby,nak prepare bfast/bekal babah.Banyakk kali kene pump sambil dukung adik.Saya tak pernah miss pump so far,terlambat dlm half an hour biasa buat.Some said ada freestyle tak jamin susu byk.For me itu betul lah tapi ada freestyle adalah sgt handy,buat semuanya senang.Sambil pump sambil masak sambil pakaikan baju si sulong or bagi susu kat adik.Kalau kene pakai manual mau stress saya hihi.And I am lucky my hubby supports bfeeding as much as I do.Balik kerja tolong jaga anak while saya pump.Malam2 saya bgn pump die bgn bagi EBM kat Muhsin hehe
 We are facing another challenge.Muhsin,though he drinks a lot 100mlx8-7times a day,he doesnot gain much.And the surgeon ckp he needs to be 5-6kg for the next operation.Patut operate end of this month tapi dipostpone sebab Muhsin baru 4kg.He didnot gain weight during the 38days hospital stay.Balik rumah baru naik berat.And we have a time constraint here,tak boleh afford to postpone operation beyond Oct.Syukur both his paed and surgeon are pro breastfeeding,so diorang ckp to continue bfeeding but they also prescribe an energy enhancer to be added to the EBM.The enhancer should help him to gain weight faster as it has added calory.Sebabnya the only way to add more calory in breastmilk is to express frequently dan saya tak pernah miss pump so there's nothing else I can do.So in his EBMe sekarang kene tambah Duocol,sikit je tapi dr ckp hujung2 pisau je sukatan dia.Dan saya juga buat macam ni,for each feeding,saya akan ambil 2 bottles EBM from fridge,EBM kan bila sejuk boleh clearly see fore/hind milk,part pekat/hind yg contains all the fat selalunya kat atas.So saya akan amik part yg pekat dari bottle first campur to 2nd bottle,letak dlm warmer and add a bit of Duocol.

These are my EBM.Told ya tak byk pon at one time ada 12bottles je.Dari muhriz saya sudah tahu saya ni bukanlah jenis kilang susu yg meriah tapi I believe in demand n supply concept;susu ibu mmg cukup utk anak.Saya tak simpan frozen EBM sebab kat rumah ni ada satu je fridge and I donot like the idea of storing EBM satu freezer dgn lauk2 mentah.So I just keep the EBM in the chiller,yg lebih dari 4 days akan dibuang.So far semuanya cukup for Muhsin.formula milk mmg tak ada pon kat rumah ni,insyaAllah akan cukup milk mama ni untuk kamu ok adik.Some people tak suka the idea of sharing gambar stock EBM,especially kalau yg stock banyak sampai penuh peti.Some ckp diorang riak susu meriah.For me,they are not.They deserve to be proud of the EBM they have collected sebab apa,they work for it.Bukan senang2 nak dpt penuh peti.Just ada niat tapi tak usaha tak akan dpt.Bukannya sehari nak penuhkan peti tue.Saya walaupon tak byk EBM dlm peti tapi everytime nak letak new ones saya akan kira berapa botol semuanya.psycho tak?hahaha
Saya selalu ingatkan diri each bfeeding journey is different and this time I have to fight extra hard for it.A successful bfeeding journey doesnot depends on how much you make but it's how much you want  and work for it.Sebab itu org kata bfeeding is 90% determination and only 10% milk supply.

Ok penat dah type,I hope this arrangement(being an EP mom) is just temporary,tak sabar nak directfeed budak Muhsin ni.Tapi selagi saya boleh usaha,saya akan usahakan breastmilk for him.It might not be the best for every mom,but it's undeniably the best for your baby.
Assalamualaikum
Hubby has been asking bila mau update blog.Since we have just few more months here,rasa nak merajinkan diri sikit lah update.Kang balik msia lagi lah malasnya internet tak berapa besh hihihi.Plus tatau lagi bila akan dtg balik ke Hannover nie,dtg pon kalau just ikut hubby dtg meeting kejap2 tue feelingnya mesti lain.

Hari ni I want to share pasal Muhsin,our little miracle.Muhsin turned 3months on 16 of August.Alhamdulillah balik dari hospital tak ada major issue except slow sikit to gain weight.Ini mmg of special concern because he needs to be 5-6kg before the next operation.

Muhsin was born unable to swallow.Part of his esophagus was not connected.So no connection to the stomach.A condition called Esopagheal Atresia with Trachea Fistula and can only be corrected with surgery.The upper part ended blindly like a pouch.And the lower part was wrongly connected to the windpipe/trachea.Statistic shows this condition is rare and happens only 1 in 4000 birth.It is more common in Europe/USA,kat Asia jarang.First I couldnot help but blame myself for his condition but his surgeons reassured me that nobody knows what cause this condition.

Remember my post on pregnancy complication?I had an excessive amnitioc fluid sampai kene drain out the fluid 2 times(each time the dr keluarkan 2L).That was because Muhsin was unable to swallow the fluid,sebab tue my fluid byk.Alhamdulillah didiagnos awal,so on the delivery day mmg surgeon Muhsin dah ready.They took him to NICU to do test and prepare for the operation.He was repaired on the 2nd day.I wasnot there as I was still in ICU after severe blood loss because of placenta previa and placenta accreta.

Muhsin spent 30 days in NICU and another 8 days in surgical units.Masa di NICU die experienced post operation issues like GERD(gastro reflux),pneumonia and on day 15,a dr approached my while I was waiting for visiting hours to start outside of the NICU and told me they needed to make a hole between his lung and thorax because there was liquid accumulating,this is called chylothorax.The liquid came from a leakage from a vessel that was probably injured during the operation.And the liquid caused problem in his breathing sebab tue kene intubated(dipasang breathing wire all the way to trachea) sampai 2 weeks.Kes biasa seminggu je.Sebab lama kene intubated ni,he lost his voice and we could only hear his little cry on day 28.

Looking at him now,we could not believe he got to go through all those in his early life.But he made it.He's a strong baby and we're so very proud of him.I hope this blog akan exist sampai Muhsin and Muhriz besar so they can read it and know how much hubby and I love them both.This phase is not over.2 more operations coming.Besides that,since this Esophageal Atresia(EA) falls under an association called VACTERL,muhsin was also sent for echocardiogramm to check his heart and we went to a cardiologist again last week to follow up.Alhamdulillah his heart is healthy and has no issue but the dr said it's good if we can come again to check before going back to Malaysia.And maybe check lagi sekali masa Muhsin umur 3 thn dan before going to school.Muhsin is on medication until now and maybe for the next few years.The challenge has not ended,we need to monitor kalau2 die ada problem later as common issues for a EA kid are stricture(narrowing),leakage and reflux.Narrowing causes food stuck.And acidic/gassy food/drink can initiate a reflux.Kami doakan none of this will ever happen to him.Bila rasa sedih saya selalu ingatkan diri yg Allah tak akan uji diluar kemampuan saya.Dan kalau saya rasa susah,saya akan ingatkan diri ada ibu2 yg lebih susah dari ini.Jgn merungut.Minta Allah bantu instead.Merungut dan bersedih is normal but not helping.

Semoga Allah memberikan kami kekuatan dan kemudahan didalam setiap urusan.A friend with also a special kid once wrote on her fb "Allah kurniakan anak2 istimewa utk ibu2 istimewa yg terpilih yg sabar dan tabah" Muhsin dan Muhriz are my life,lebih berharga dari everything else di dunia ini.Dan semoga Muhriz dan Muhsin membesar menyayangi satu sama lain,taat dan faham pada agama dan keluarga.Mama dan Babah love you both sgt kuasa berapa juta pon tak tahu :)



 Esok mama tulis lagi sementara tgh mood rajin ni(Actually babah suruh hihi)

Oops if any reader is reading,selamat hari raya ye.Kami tak beraya mana pon kat sini :)


Assalamualaikum,selamat berpuasa semua

Muhsin came home on day 38,Saturday 22 June 2013.Ingat nak tulis our experience berulang alik ke hospital for more than a month tu tapi maybe later.Sekarang nak update pon tak sempat,kene berebut laptop dgn abg Muhriz satu hehe.Muhriz has been a wonderful big bro.Sayang kat adik,suka kiss adik.Bila Muhsin menangis,depending on his mood,dia akan dtg to his adik,pegang tangan adik or usap kepala dan ckp "Do not cry" :) Tapi ada time tak boleh tinggal die berdua sebab die still curious,habis mata hidung telinga adik kene picit =p.So dah almost a month.Sometimes bgn tido macam tak percaya my baby is home :) I remember,3 days before he was discharged from the surgical unit,the moment his surgeon told me Muhsin was ready to go home,I cried in disbelief.I'd been longing to take him home but was not too sure if I could look after him macam nurse2 and doctors there did.Too anxious and overwhelmed,I asked him "Do you think I can keep my baby safe and well at home?Should I watch his breathing?Over here they have this detector to monitor his oxygen intake,heartbeat but I have none at home,so what if he's struggling?What should I do??"berpuluh2 soalan keluar instantly.But he told me to relax,go home,talk to my husband,prepare and plan Muhsin's stuff,write down all the question and most importantly do not worry too much as I would manage it.Muhsin was sick,but that was before.Then he's fit and healthy so just treat him like Muhriz,like a normal baby.We walked away from the hospital nursery with a mixture of joy and insecure.But the surgeon was true.Muhsin has been an angel.Though his little cough can sometimes be frightening,but we manage and settle it.Just look at him now,budak gembira tapi suka sgt berdukung,jgn harap nak letak hehe.Thank you Allah for granting our doa and keeping him healthy