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harith ami & muhriz

Assalamualaikum
Hubby has been asking bila mau update blog.Since we have just few more months here,rasa nak merajinkan diri sikit lah update.Kang balik msia lagi lah malasnya internet tak berapa besh hihihi.Plus tatau lagi bila akan dtg balik ke Hannover nie,dtg pon kalau just ikut hubby dtg meeting kejap2 tue feelingnya mesti lain.

Hari ni I want to share pasal Muhsin,our little miracle.Muhsin turned 3months on 16 of August.Alhamdulillah balik dari hospital tak ada major issue except slow sikit to gain weight.Ini mmg of special concern because he needs to be 5-6kg before the next operation.

Muhsin was born unable to swallow.Part of his esophagus was not connected.So no connection to the stomach.A condition called Esopagheal Atresia with Trachea Fistula and can only be corrected with surgery.The upper part ended blindly like a pouch.And the lower part was wrongly connected to the windpipe/trachea.Statistic shows this condition is rare and happens only 1 in 4000 birth.It is more common in Europe/USA,kat Asia jarang.First I couldnot help but blame myself for his condition but his surgeons reassured me that nobody knows what cause this condition.

Remember my post on pregnancy complication?I had an excessive amnitioc fluid sampai kene drain out the fluid 2 times(each time the dr keluarkan 2L).That was because Muhsin was unable to swallow the fluid,sebab tue my fluid byk.Alhamdulillah didiagnos awal,so on the delivery day mmg surgeon Muhsin dah ready.They took him to NICU to do test and prepare for the operation.He was repaired on the 2nd day.I wasnot there as I was still in ICU after severe blood loss because of placenta previa and placenta accreta.

Muhsin spent 30 days in NICU and another 8 days in surgical units.Masa di NICU die experienced post operation issues like GERD(gastro reflux),pneumonia and on day 15,a dr approached my while I was waiting for visiting hours to start outside of the NICU and told me they needed to make a hole between his lung and thorax because there was liquid accumulating,this is called chylothorax.The liquid came from a leakage from a vessel that was probably injured during the operation.And the liquid caused problem in his breathing sebab tue kene intubated(dipasang breathing wire all the way to trachea) sampai 2 weeks.Kes biasa seminggu je.Sebab lama kene intubated ni,he lost his voice and we could only hear his little cry on day 28.

Looking at him now,we could not believe he got to go through all those in his early life.But he made it.He's a strong baby and we're so very proud of him.I hope this blog akan exist sampai Muhsin and Muhriz besar so they can read it and know how much hubby and I love them both.This phase is not over.2 more operations coming.Besides that,since this Esophageal Atresia(EA) falls under an association called VACTERL,muhsin was also sent for echocardiogramm to check his heart and we went to a cardiologist again last week to follow up.Alhamdulillah his heart is healthy and has no issue but the dr said it's good if we can come again to check before going back to Malaysia.And maybe check lagi sekali masa Muhsin umur 3 thn dan before going to school.Muhsin is on medication until now and maybe for the next few years.The challenge has not ended,we need to monitor kalau2 die ada problem later as common issues for a EA kid are stricture(narrowing),leakage and reflux.Narrowing causes food stuck.And acidic/gassy food/drink can initiate a reflux.Kami doakan none of this will ever happen to him.Bila rasa sedih saya selalu ingatkan diri yg Allah tak akan uji diluar kemampuan saya.Dan kalau saya rasa susah,saya akan ingatkan diri ada ibu2 yg lebih susah dari ini.Jgn merungut.Minta Allah bantu instead.Merungut dan bersedih is normal but not helping.

Semoga Allah memberikan kami kekuatan dan kemudahan didalam setiap urusan.A friend with also a special kid once wrote on her fb "Allah kurniakan anak2 istimewa utk ibu2 istimewa yg terpilih yg sabar dan tabah" Muhsin dan Muhriz are my life,lebih berharga dari everything else di dunia ini.Dan semoga Muhriz dan Muhsin membesar menyayangi satu sama lain,taat dan faham pada agama dan keluarga.Mama dan Babah love you both sgt kuasa berapa juta pon tak tahu :)



 Esok mama tulis lagi sementara tgh mood rajin ni(Actually babah suruh hihi)

Oops if any reader is reading,selamat hari raya ye.Kami tak beraya mana pon kat sini :)


5 comments:

Anonymous said...

Masya-Allah, mmg aturan/perancangan Allah yang terbaik. Allah aturkan for you to be in Hannover to deliver him, which I believe you can easily get medical advices (from experts) and treatment on a special case like this as you said it is more common in Europe than Asia. Subhanallah...

Ami said...

Itulah mmg kalau tgk from the very beginning pon mmg Allah atur cantik je.His babah actually lepas spm dpt offer to japan and germany tapi he chose germany even dah pgi preparation program utk ke Japan for a few weeks.Bila dah habis study berkeras nak keje dgn German company tgk2 accept offer from Continental yg HQ nye kat Hannover ni.From my conversation with other mommies in NICU/surgical wards many of them came from far macam Hamburg(2hrs away) and even Dusseldorf(3hrs away) from Hannover.Hospital tue just 8km from our house.Dan when the dr found out the condition of Muhsin,turned out they just handle a baby with the same condition few months back.Yakin lah Allah tidak akan uji diluar batasan dan segalanya akan dipermudahkan kalau kita sentiasa minta

Nurul Diana@Mama Adam + Aidil said...

suweetnya tgk gmbr hero berdua nie .. takper ami dugaan .. ada hikmahnya ... salam aidilfitri ami ;-)

Unknown said...

insyaAllah doakan yg terbaik ye Diana

F9C said...

salam...
saya teruja membaca blog saudara..
sebab baby saya juga mengidap penyakit chylothorax...
klu boleh nak tau perkembangan bagi baby yang mengidap penyakit nie...
mohon jasa baik saudara untuk share sikit tentang penyakit ni..
no. saya : 0127452849

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